The journey through life can feel isolating for families of children with Hunter syndrome, which is a genetic disorder that can result in severely impeded cognitive, behavioral, and psychological development. Children may not be able to communicate effectively with others, which can leave them feeling frustrated and alone, and parents may not know where to turn for hope and answers. The website for the STARLIGHT Study is meant to bring light and positivity to families who may be overwhelmed in their quest to find a spark of hope in what can feel like a world of darkness.
The website—from the headline “Shining Light on Hunter Syndrome” to the custom illustrations to the patient-focused language—seeks to highlight both the physical aspect of bringing Hunter’s syndrome to the forefront and the metaphorical aspect of following a path toward potential answers. The illustrations show families coming together to watch as their children create light in the sky. Each child takes part, working as a team to achieve the ultimate goal of a bright, new future. Various ages and ethnicities are represented, making this a recognizable visual despite being fully illustrated. Bold colors, warm textures, and clean but whimsical fonts draw you in.
The STARLIGHT Study website is hopeful, warm, and inspiring. It sends the message that through clinical research, a community of people can come together to shine a light on more possibilities for their children.
